Its the day we Don't have to get ready for Doctor appointments.
This week Alex went to SEVENTEEN doctors appointments. (Makes me tired just thinking about it, can't imagine how Alex feels). He starts his mornings off with 8 pills and a Protein shake (thanks TwinLabs for the powder mix). I haven't been able to attend his PT or OT appointments this week but I heard that he is continuing to make progress. Remember the test he did last week (sit on a bench, stand up, walk to a line, turn around, walk back and sit down)? Well, he cut his time in half this week he did it 20.8 sec's. Wahoo!!! Alex and his Grandpa have been going to appointments and even went out for a few lunches this week.
Alex walks by sight. If he closes his eyes, he falls, so in order to walk he has to watch every step. He can walk pretty much unassisted now, but prior to him walking anywhere we have to make sure that lights are on & everything is off the floor etc.. He woke up at 3am the other night and needed to use the restroom, Normally that wouldn't be a big deal, BUT... We had to turn all the lights on from his room to the bathroom, in order to make it there, by that time I was wide awake.
Alex can go up the stairs really well, coming down is getting a lot smoother, he still goes down the stairs backwards. He feels the step with his foot and places one foot down at a time, takes about a min to get down. He's getting faster everyday.
Alex saw his Neurologist Friday and was supposed to have an EMG test (An electromyogram (EMG) is a test that is used to record the electrical activity of muscles. When muscles are active, they produce an electrical current. This current is usually proportional to the level of the muscle activity. An EMG is also referred to as a myogram.) After his Dr. visited with him for a while he decided not to do the test, because of a few reasons. #1 its VERY painful #2 after looking at his MRI's and observing Alex's movements he believes the nerves aren't dead. We've always believed this and now are very hopeful that this is correct.
Now, no offense to any Doctors that might be reading this...but you know when you go to have a test or shot and the Doctor says "don't worry it wont hurt" and then it does hurt. Or the Doctor says "now this might hurt a little bit" and then it totally kills!!??!! Well, with this EMG test, every Doctor that has talked to us about it has told us its Very Painful! So, if a Doctor tells you its painful I cant even imagine how bad it must hurt. Alex's pain Doctor prescribed him an extra dose of pain meds specific for this test, his Neurologist asked what he gave him, I told him, he says "If we do this test in a week or two, double that dose of pain meds". Yikes!!!
I'm glad for Alex that the test wasn't done, because he had such a long and tiring week. The test will only help with his prognosis, its a test for info, nothing else (it won't help him get better). So if he keeps improving he wont have to get the test. (Keep the prayers coming).
Have a great weekend - Thanks, Kaleen aka Alex's mom
Welcome friends and family of Alex and Dane!
This Blog has been created by friends and family of Alex and Dane as they make their way down the road to recovery. Please keep them in your thoughts and prayers as this road will likely be a long one. Feel free to check back often for status updates on both Alex and Dane, and be sure and leave your well-wishes when you visit. The boys will be shown this blog when they are awake.
We sincerely Thank You for your concern and friendship. Alex and Dane will always remember the support of friends and family like you.