Ok - ready, set, go - heres an update on Alex from his mom -
Alex can move his entire body and uses his size to try to get out of the bed. Hes in the Pediatric unit and was in a childs bed, but due to his size and strength, they put him into an adult bed. He came up with some creative moves to bust loose of the bed. So we know he can move. However, he isnt having controlled movement with fingers and toes on the left side. Right side is fine. We were hoping that the lack of movement in his left hand was because of the burns on his fingers. But to be safe an EEG (Electroencephalogram http://www.webmd.com/epilepsy/electroencephalogram-eeg-21508) was ordered for Sunday am.
Saturday night was very restless - lots of mumbling, tossing and turning (well wanting to turn, he cant, his arms are tied to the bed).
Sunday am bright and early rounds started. First the Burn Care team came in - there was about 6 of them checking his chart. As they left the EEG Tech came in and started prepping him for that test. Alex has so much cream on his face for the burns that it was difficult to get the wires attached, it took over an hour to prep him. As soon as he left the Burn Team came back to clean (scrub) his wounds. His face is looking great - I dont think there will be any scaring at all on his face - he will still be Mr. Handsome. His neck is going to require a skin graft. His chest and legs look ok, but around his belly button (where his belt buckle was) is also going to also need skin grafting. The docs think it will be done sometime this week, using skin from his thigh. Then the Neurologist came in to give us a report of his EEG.(all this was done prior to 2pm). Neurologist says, the test shows Moderate brain damage to his right central parietal. Now since Im not a doctor and not thinking too clear I cant really explain it in medical terms. But basically, Alex might have some balance issues on his left side and some memory/defused slowing in speech and thought. They put him on an IV of Keppra (which is used for seizures). He isnt having seizures but this medicine should help his brain activity . He will get Keppra for 3 days then another EEG will be done. I think he will be fine, I think he is just slow moving due to the accident, due to all the drugs they are giving him and just all the stress. So we will stick with my diagnosis not the doctors for the next 3 days. :)
I do have to say that the things Alex is saying help support my diagnosis because he is saying some pretty incredible and funny things. I will start posting some of them, but you all better not tease him about it in a few months when he gets back to school - lol
He wanted some water yesterday (he cant have any because he dosent have a gauge reflex yet) So he kept asking the nurse for water, she keeps telling him no so He says "I was perfectly fine playing video games drinking gallons of water until this happened, you wont give me any water and that is unexceptionable"
Welcome friends and family of Alex and Dane!
This Blog has been created by friends and family of Alex and Dane as they make their way down the road to recovery. Please keep them in your thoughts and prayers as this road will likely be a long one. Feel free to check back often for status updates on both Alex and Dane, and be sure and leave your well-wishes when you visit. The boys will be shown this blog when they are awake.
We sincerely Thank You for your concern and friendship. Alex and Dane will always remember the support of friends and family like you.